Alecia Maringola, SMA Contributor

Alecia Maringola, born and raised in Southington, CT, was diagnosed with the rare disease spinal muscular atrophy (SMA) at 13 months of age. At a very early age, Alecia was challenged by a disease that progressively weakens voluntary muscles, along with scoliosis. She credits her faith in God and the love of family “of the utmost importance to me.” Today, Alecia, now 35 years old, is doing her best to live life to its fullest and help others with SMA do the same.

All articles by Alecia Maringola, SMA Contributor

Patient Perspectives, SMA Columns

Despite Living With SMA, I Have Many Thanks to Offer

Alecia Maringola, SMA Contributor

December 12, 2022

Living with a rare disease, such as spinal muscular atrophy (SMA), can at times cloud the perception of being thankful.

Patient Perspectives, SMA Columns

The Ways My “Fur Baby Companion” Helps Me Cope With SMA

Alecia Maringola, SMA Contributor

November 15, 2022

There are many things I use to help me cope with living with my rare disease, spinal muscular atrophy (SMA).

Patient Perspectives, SMA Columns

In a Life With SMA, Familiar Routines Are Most Challenging

Alecia Maringola, SMA Contributor

November 8, 2022

I have lived many years with spinal muscular atrophy (SMA), and every day reminds me how difficult it is to manage daily routines.

Patient Perspectives, SMA Columns

Bittersweet Fall Memories as I Age With Spinal Muscular Atrophy

Alecia Maringola, SMA Contributor

October 11, 2022

I always had a heart for having fun, and I wasn’t going to allow spinal muscular atrophy (SMA) to steal my joy.

Patient Perspectives, SMA Columns

The Innocence of Children Helps Make My SMA Journey Easier

Alecia Maringola, SMA Contributor

September 16, 2022

Living with spinal muscular dystrophy (SMA) is wrought with constant emotional ups and downs.

Patient Perspectives, SMA Columns

SMA Awareness Month Demonstrates How Much Progress Has Been Made

Alecia Maringola, SMA Contributor

August 16, 2022

I rejoice now, living in an era when spinal muscular atrophy (SMA) has been gifted the privilege of a whole month (August) dedicated to awareness.

Patient Perspectives, SMA Columns

Finding the Good in Being a Rare Disease Patient

Alecia Maringola, SMA Contributor

August 9, 2022

It’s easy to discuss and concentrate on the lack of experiences one misses out on while living with a rare disease such as spinal muscular atrophy (SMA).