Alan Hieber, DMD Contributor

https://www.linkedin.com/in/alanhieber/

Alan is 27 and earned his bachelor’s degree in mass communication from Wright State University in Dayton, Ohio, in 2016. His writing background is primarily in sports. He has done public relations work for Wright State’s athletic teams and several articles for the Dayton Daily News. At birth, he was diagnosed with the rare genetic and degenerative muscle disease Duchene muscular dystrophy, and he receives care for his condition at a renowned clinic within Cincinnati Children’s Hospital Medical Center.

All articles by Alan Hieber, DMD Contributor

headphones and game console

DMD Columns, Patient Perspectives

How Video Games Offer Me Stress Relief From DMD

By

Alan Hieber, DMD Contributor

June 24, 2022

Video games have played a key role in managing my Duchenne muscular dystrophy.

Wheelchair competitive soccer

DMD Columns, MS Columns, Patient Perspectives, SMA Columns

How Wheelchair Power Soccer Adds Vigor, Energy to a Rare Disease Patient’s Life

By

Alan Hieber, DMD Contributor

June 3, 2022

Finding a sport to watch that includes people who look like me, a Duchenne muscular dystrophy (DMD) patient, is difficult.

person in wheelchair

CureDuchenne FUTURES 2022, DMD Columns, Patient Perspectives

CureDuchenne Conference Underscores Role of Parents as Caregivers

By

Alan Hieber, DMD Contributor

May 30, 2022

The speakers at a CureDuchenne FUTURES conference session I took in were mothers of children and an adult with Duchenne muscular dystrophy (DMD).

vegetables

Conferences, CureDuchenne FUTURES 2022, DMD Columns, Patient Perspectives

CureDuchenne Conference Confirms What I Know, Adds More Insight Into a DMD Life

By

Alan Hieber, DMD Contributor

May 28, 2022

Three medical providers gave presentations on how to balance these factors with the lifestyles that surround Duchenne muscular dystrophy (DMD).

Music in brain

DMD Columns, Patient Perspectives

My Song List for Coping With Duchene Muscular Dystrophy

By

Alan Hieber, DMD Contributor

April 15, 2022

In this column, contributor AlanHieber shares his playlist that he feels encapsulates what iit is like to have Duchenne muscular dystrophy (DMD).

man and son holding hands

DMD Columns, Patient Perspectives

My Father’s Strength and Resilience Have Been Key in My Battle With DMD

By

Alan Hieber, DMD Contributor

April 1, 2022

My father pays close attention to the around-the-clock care that my disease, Duchenne muscular dystrophy (DMD), requires.

Man watching football on television

DMD Columns, Patient Perspectives

Lessons Learned From My Daily Battle With Fatigue From DMD

By

Alan Hieber, DMD Contributor

March 18, 2022

The number one way I combat my often depleted energy is by giving my body the rest it needs to function effectively.

Shinneman family

DMD Columns, Patient Perspectives

Fighting Neuromuscular Disease Is a Team Sport

By

Alan Hieber, DMD Contributor

March 15, 2022

As a Duchenne muscular dystrophy (DMD) patient, from about age 11 through 26, marathons were an annual tradition for me.

caregiver

DMD Columns, Patient Perspectives

Rare Disease Day Underscores the Vital Role of Advocacy and Raising Awareness

By

Alan Hieber, DMD Contributor

February 24, 2022

The unique hindrances that patients and caregivers in the rare disease community encounter are given attention on Rare Disease Day.

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mother and daughter with doctor

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